A podcast for people with Neurofibromatosis (NF-1, NF2-SWN, and Schwannomatosis)--and the people who care for them.

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Latest Episodes

End of Season One

This is officially the end of Season 1. Thanks everyone, see you in 2025 for Season 2!

The Art and Science of Facial Reanimation--A Deep Dive with Dr. Tessa Hadlock

My guest for this episode is Dr. Tessa Hadlock, a renowned facial plastic surgeon and expert in facial nerve disorders. Dr. Hadlock discusses her pioneering work in fa...

Genetics, Research, and Future Therapies for NF1 with Dr. David Gutmann

In this episode, my guest is Dr. David Gutmann, a leading neurologist specializing in Neurofibromatosis Type 1 (NF1). The conversation delves into Dr. Gutmann's ground...

The Role Of Service Dogs in NF with John Manth

My guest this episode is John Manth, father of Leah Manth, who was diagnosed with Neurofibromatosis Type 2 (NF2-SWN) in 2007. John discusses their family's journey in ...

Strategies for Living with Chronic Pain with Dr. Frank Buono

This episode features Dr. Frank Buono, an Associate Research Scientist and Lecturer at the Yale School of Medicine, discussing his research on utilizing digital techno...

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